5-year-old boy makes medical history in Arizona

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by Casey James

azfamily.com

Posted on October 26, 2013 at 2:36 PM

Updated Monday, Oct 28 at 9:09 AM

PHOENIX -- A Phoenix 5-year-old has made medical history in Arizona.

He suffers from a rare disease that causes him to stop breathing if he falls asleep.

Cash Davis was born not breathing.

"When they brought him over to me he was blue, so obviously something wasn't right," said Tracey Davis, Cash's mom.

Doctors quickly did a tracheotomy on the newborn and a few hours later the doctors told Tracey the bad news.

"He says I have only seen this one other time in 20 years," Tracey continued. "I think he might have Congenital Central Hypoventilation Syndrome."

It's a gene mutation disease that basically causes the body to forget to breathe, says Tracey.

Tracey, a single mom of three boys, says she lived in fear, always paranoid that her son would stop breathing.

"If we ever forget the ventilator, you have that anxiety, what if he falls asleep," Tracey said.

In July, everything changed when Cash was the first kid in Arizona to receive a breathing pacemaker.

Surgeons at Phoenix Children's Hospital performed the two-and-a-half-hour surgery.

"The pacemaker reminds the nerve to fire and makes the diaphragm move," said Dr. David Notrica, who performed the surgery.

 

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