Mom of 20-month-old with psoriasis on mission to educate people about disease

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(Source: 3TV/CBS 5) (Source: 3TV/CBS 5)

A 20-month-old little girl is battling severe psoriasis. Her mother is sharing her story not only to empower her daughter, but to also educate people about the disease.

"Charlie is just such a fun-loving happy baby, she makes us laugh all day long," said Ashley Nagy.

When her daughter, Charlie, was only 2 weeks old, Nagy noticed a rash under her chin.

"She was a chunky baby, so I was thinking it was milk, and we needed to make sure we get it cleaned out really well," Nagy said. 

But it didn't go away, and treatments only made it worse. Months later, she would be diagnosed with psoriasis.

"It breaks your heart to see her suffer like this, especially when shes up in the middle of the night crying, when shes crying in the bath, when she doesn't want us to touch her," Nagy said.

Nagy started an Instagram account to raise awareness and show people psoriasis is not contagious. 

"This little girl was touching Charlie's arm, and they were playing and the mom grabbed her and pulled her close,"

Nagy tries to keep Charlie's psoriasis at bay with a dairy-free and gluten-free diet. They also do a lot of night soaks with essential oils and vinegar, but when she has flare-ups, they use prescription topical creams. 

"It's an inflammatory, autoimmune condition that can affect other organs in the body," said Dermatologist Dr. Paul English with English Dermatology. He is not treating Charlie, but he said infants can be difficult to treat because most medications are approved for children ages 12 and up. 

"I'm not aware of anyone who's ever been cured of psoriasis," he said. "There are certainly people who can develop it and have it go away in remission, especially children.

Nagy said she may not have the cure, but she has the ability to raise a strong, confident daughter.

"I don't want her to think this will hold her back from anything in life," Nagy said.

Currently, she and her husband pay about $1500 out of pocket for medications that insurance doesn't cover. To help, visit their GoFundMe.

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