KTTU "In Focus," Sunday, 5/23/10, 10:30 AM & KMSB "Fox-11 Forum," Sunday, 6/27/10, 7:30 AMPosted: Updated:
Host Bob Lee interviews Angela Ratts, Hemophilia Nurse Practitioner, AZ Hemophilia & Thrombosis Center, University of Arizona Health Sciences Center, and Daniel Lust, President of the Cascade Foundation of So. AZ board of directors. Daniel has two sons with Hemophilia. There about 180 hemophilia patients in Southern Arizona, about 60 of which are children.
Ratts says hemophilia is a hereditary disorder in which the clotting ability of the blood is impaired and excessive bleeding occurs. She says a person with hemophilia will not bleed to death, but will bleed longer. She says it may go undiagnosed until excessive bleeding occurs as a result of a dental procedure, surgery or trauma. She says the gene that causes hemophilia is carried by the female, and there may be no history of the disorder in her family.
Lust says that was the case with his wife. There was no family history of hemophilia. He says their first born didn’t indicate anything was wrong for five days. He says then the baby had seizures and it was determined bleeding of the brain occurred. That, he says, is a very rare occurance and did result in additional physical and cognitive issues for the boy. He says his second son also has hemophilia but no additional health issues.
Ratts says treatment involves an infusion of medicine to replace the patient’s missing clotting factor. She says a port is placed in the patient and the medicine can be administered at home, three times a week. She says most people with hemophilia can lead normal, active lives. Kids, she says, can even participate in most athletic programs, except for “high contact” sports such as football. She says there is no cure the disorder.